Pyruvate Kinase Deficiency International Alliance
Enhancing the quality of life for patients with PK deficiency and their families by providing awareness, expanding education and promoting advocacy.
Our Purpose
The Pyrvuate Kinase Deficiency International Alliance provides science-based education to patients, their caregivers, and the medical community. Our nonprofit advocates on behalf of our community for affordable and accessible treatment options. We support rigorous research that advances the understanding and treatment of pyruvate kinase deficiency for patients of all ages, empowering healthy, long, fulfilling lives.
Our Objectives
Developing programs that meet the medical, financial, psychosocial and education concerns/needs of those affected by PK deficiency
Offering educational and support materials through its website, provider database, newsletter, and brochures
Providing a national database of specialists knowledgeable in PK deficiency
Providing resource listing of physicians participating in clinical trials
Sponsoring education to assist medical professionals in establishing appropriate standardized diagnostic and treatment guidelines
Sponsoring national and regional meetings
Supporting research into the cause and management of PK deficiency
