Alejandra Selene Watson

President, Co-Chair

Michigan, USA

Alejandra Selene Watson is a dedicated advocate, educator, and community leader supporting individuals affected by rare diseases. A mother of four, she co-founded the first international PKD support group in 2013 and contributed to the development of the International Guidelines for Diagnosis and Treatment of PKD published in The Lancet Hematology.

As President of the Pyruvate Kinase Deficiency International Alliance, Alejandra drives global efforts in awareness, education, and advocacy. During her collaboration with Agios Pharmaceuticals’ Advocacy Council, she contributed to the Communications White Paper and Life Phase Model, both presented at leading hemolytic platforms, including the American Society of Hematology, European Hematology Association, and National Organization for Rare Diseases. She also works closely with Red Cell Revolution (RCR) and The Rare Anaemias International Network (RAIN) to advance research and treatment options.

Beyond advocacy, Alejandra has over a decade of experience as a Head Start assistant teacher, specializing in trauma-informed care and crisis intervention.

Fluent in English and Spanish, Alejandra is a trusted leader in navigating medical and educational systems, ensuring that all individuals have access to the resources they need to thrive.