Carl Lander

Research Director

Wiltshire, UK

Carl is a Registered Nurse who lives with pyruvate kinase deficiency, one of the inherited metabolic disorders. He has spent a career in the National Health Service across a range of disciplines and roles and has experienced a wealth of his own and others' lived experiences. Carl is Co-Chair of MSUK and the International Collaboration Director of the Pyruvate Kinase Deficiency International Alliance, based in the USA. He spends much of his time advocating for better care for those with PK Deficiency, and as a long-standing Peak Registry steering committee member (a global registry of data for those with pyruvate kinase deficiency) has co-authored several papers discussing the impacts of this disorder.

Carl is currently undertaking a PhD., exploring how patient reported outcome measures and be better used in inherited metabolic disorders. Carl was awarded an MSc in 2024 in Advanced Health and Care Management, centering on Value-Based Healthcare, something that he is passionate about, helping to bring patient-centered care to the healthcare system.